Mishawaka mourns the passing of Ryan Shull, a young boy whose life, though marked by physical challenges, was a testament to joy, love, and unwavering spirit. Ryan passed away at the age of 12 in a care facility in Logansport, leaving behind a legacy of happiness and inspiration for all who knew him.
Despite never walking or speaking more than a few words, Ryan lived a life rich in love and simple pleasures. His memorial service at Bubb Funeral Chapel celebrated a boy who, though physically small at just 56 pounds, had an enormous impact on those around him.
Ryan’s mother, Wendy Shull, and grandmother, Marilyn Lee, along with friends and caregivers, remembered a child who found delight in everyday moments. He loved his family, their dog Keyin, and the comfort of familiar routines. Mashed potatoes and pureed pot roast were favorite meals, and the animated antics of Nick Jr.’s Paw Patrol never failed to elicit squeals of joy. Even flipping through books, a task that required considerable effort due to his physical limitations, brought him pleasure.
But Ryan was not just a passive recipient of care; he possessed a mischievous and playful side. Wendy recounted with a smile how Ryan would purposefully wheel his wheelchair into a corner and then cry out as if trapped, only to burst into laughter and try to tickle anyone who came to his rescue. This spirited nature, coupled with his determination to overcome his health obstacles, endeared him to everyone involved in his care.
Marilyn Lee fondly recalled, “Ryan was always a happy, loving boy. He brightened a lot of people’s lives and brought so much happiness and love to everyone he touched.”
A Miraculous Survival and Enduring Challenges
Ryan’s life had been intertwined with extraordinary circumstances from a young age. In 2006, at just 17 months old, he miraculously survived a fall from the fourth story of St. Joseph’s Tower in downtown South Bend, now known as Trinity Tower. He had been visiting his great-grandmother with his father, George Shull, and older sister, Mandy, when he slipped through a railing on a stairway balcony.
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The family pursued legal action against Trinity Continuing Care Services, arguing that gaps in the railing were dangerously wide. An out-of-court settlement provided funds that helped the family navigate Ryan’s extensive medical needs, repaying Medicaid, purchasing a home, and acquiring a specialized wheelchair-accessible van.
Wendy Shull dedicated herself to Ryan’s care at home until April, when she made the difficult decision to temporarily place him at Camelot Care Center in Logansport, a facility specializing in care for children with complex medical conditions. This respite care was intended to be temporary, providing support while Wendy attended to her mother’s health needs in Chicago. The plan was to bring Ryan back home to Mishawaka soon, as Marilyn’s health was improving.
Tragically, on July 16th, Wendy received a call from Camelot Care Center informing her that Ryan had become unresponsive. Despite attempts to revive him, Ryan passed away due to aspiration of vomit while in bed. This was a known risk given the neuromuscular damage he sustained from his childhood fall. He received nutrition through a gastrointestinal tube as he could not safely drink liquids orally without risk of liquid entering his lungs. While a surgical procedure, Nissen fundoplication, had been performed to minimize stomach acid reflux, it did not eliminate the possibility of vomiting.
A Lasting Impression on Caregivers
The suddenness of Ryan’s death deeply affected those who cared for him at Camelot Care Center. Certified Nursing Assistants Ashley Zawadzki and Sarah Hamilton traveled from Logansport to Mishawaka to attend Ryan’s memorial service. They explained that because Ryan’s passing was unexpected, unlike the gradual decline some patients experience, they felt a need to say a proper goodbye.
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Watching a slideshow of Ryan’s life set to Sarah McLachlan’s “Angel,” they shared their cherished memories of the young boy. “I’m glad I got a chance to meet him,” Zawadzki said. “I’m glad he came to Camelot. For sure.” Hamilton added, “His smile was so contagious. Even on your bad days, you’d walk in there and he’d smile and make your day completely better.”
Vickie Craker, Ryan’s dietician since his accident, echoed these sentiments. “He just had the sweetest little spirit,” Craker remarked. “There was something special about him.” She expressed hope that Ryan’s life could serve as “a vehicle of hope for other families with children with disabilities.” Craker also praised Wendy Shull’s unwavering dedication, calling her “one of the strongest advocates ever that I have seen… It was just selfless love. She would put his needs above hers.”
Denise Wynegar, nurse manager at Memorial Hospital’s Pediatric Multi-Specialty Clinic, further emphasized Wendy’s exceptional motherhood. “She got him out,” Wynegar noted, describing how Wendy ensured Ryan participated in life, attending events and activities. “You see pictures of him coloring and doing crafts. She would be right there and connected with him. She would talk to him as if he did not have this disability. She’d almost translate for him. A good mom.”
In an interview, Wendy Shull spoke of the profound loss, alternating between tearful moments and fond anecdotes of Ryan’s playful nature, like his habit of throwing items from shopping carts at Walmart. “He was the light of my life,” Wendy said, her voice filled with emotion. “He was my angel.”
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